Category Archives: patient-centered outcomes research

PCORI Board Sets Listening/Webinar Mode
Only on Revised Research Priorities

It looks like The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors will hold a special teleconference/webinar in watch-only mode via teleconference/webinar on Wednesday, April 25, 2012. The Board will discuss and vote on PCORI’s revised National Priorities for Research … Continue reading

Posted in patient-centered outcomes research, PCORI | Tagged , | Comments Off on PCORI Board Sets Listening/Webinar Mode
Only on Revised Research Priorities

Patient Centeredness: Definitions Fuzzy,
Testing, Lawsuits Ahead #ECRI_FDA

Panel #2 – Lawyers are going to have a field day with what is patient centeredness. Jane Hyatt Thorpe, JD, Assoc. Research Prof. ACA – Medicare – care individual/population, average. IOM – patient centeredness refers to care – needs, desires … Continue reading

Posted in clinical trials, comparative effectiveness research, FDA, patient-centered outcomes research, patients | Tagged , | 1 Comment

Patient Centeredness in Policy & Practice:
Live from ECRI_FDA Meeting

Numerous challenges various entities are facing and building patient-centeredness. Panel #1: Susan Dentzer, Health Affairs, Margaret Hamburg, FDA Commissioner, MD, Carolyn Clancy, MD, Director, AHRQ, Joe V. Selby, MD, MPH, Executive Director, PCORI Hamburg: onslaught of HIV/AIDS epidemic in NYC … Continue reading

Posted in Listening to patients, patient-centered outcomes research, patients | Tagged , | Comments Off on Patient Centeredness in Policy & Practice:
Live from ECRI_FDA Meeting

An Update: The Patient-Centered Outcomes Research Institute Meeting in New York

After urging readers to attend the Patient-Centered Outcomes Research Institute (PCORI) daytime meetings in New York on Monday and Tuesday of this week, I have to say that after attending day 1, I was disappointed. That’s because it turned out … Continue reading

Posted in comparative effectiveness research, Healthcare reform, patient-centered outcomes research, PCORI | Tagged , , | Comments Off on An Update: The Patient-Centered Outcomes Research Institute Meeting in New York

Reminder: Patient-Centered Outcomes Research Institute Seeks Public Comment on What Matters to Patients

Designing healthcare research with what matters to patients is a relatively new concept in healthcare research. If the healthcare reformers who envisaged what is called “patient-centered outcomes research” truly want to hear from patients and the public, then tomorrow’s meeting … Continue reading

Posted in Healthcare reform, patient-centered outcomes research, PCORI | Tagged , , , | Comments Off on Reminder: Patient-Centered Outcomes Research Institute Seeks Public Comment on What Matters to Patients

Clarification: Patient-Centered Outcomes Research Meeting Set for Two Days, One Evening

My earlier post neglected to mention that this meeting will take place on Monday, May 16th and May 17th. Unfortunately, the Discussion Forum was on a separate announcement. It will still take place, but you may want to attend all … Continue reading

Posted in event, Healthcare reform, patient-centered outcomes research, PCORI | Tagged , , | Comments Off on Clarification: Patient-Centered Outcomes Research Meeting Set for Two Days, One Evening

Upcoming Event: Putting the Patient in the Center of Health Care Research

Has health care research seemed removed from you, as if it happens from the top down? That’s understandable. Health policy people and reformers often lament that they exist in a separate world, wondering what the heck matters to patients. So … Continue reading

Posted in comparative effectiveness research, Healthcare reform, patient-centered outcomes research, PCORI | Tagged , , | 1 Comment