Category Archives: patient advocacy groups

RIP Jenny Knauss, Lifelong Activist for Patients,
Women’s Health, and Alzheimer’s Spoken Here

Posted on June 12, 2012 by Laura Newman

Before many of us heard the expression “patient-centered care,” Jenny Knauss was out front on the issue in the US, the UK, and in Africa. Ever the radical, she was a tireless advocate for reproductive rights, women’s health, and improving … Continue reading →

Posted in Alzheimer's disease, disparities, health advocacy organizations, patient advocacy groups, pregnancy, teens | Tagged , , , , | 10 Comments

On Disclosure, Transparency, and Firewalls: A Call for Uniform Standards

Posted on May 7, 2011 by Laura Newman

Since Patient POV was launched March 29, I have been struggling with how to deal with the issue of industry-supported patient advocacy groups. On Thursday, ProPublica released its paper: “Financial Ties Bind Medical Societies to Drug and Device Makers” with … Continue reading →

Posted in American Academy of Ophthalmology, Avastin, disclosure, Drug costs, firewalls, nonprofits, Parkinson's Disease Foundation, patient advocacy groups, transparency | Tagged , , , , | 9 Comments