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Category Archives: patient advocacy groups

RIP Jenny Knauss, Lifelong Activist for Patients,
Women’s Health, and Alzheimer’s Spoken Here


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Tweet Before many of us heard the expression “patient-centered care,” Jenny Knauss was out front on the issue in the US, the UK, and in Africa. Ever the radical, she was a tireless advocate for reproductive rights, women’s health, and … Continue reading


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Posted in Alzheimer's disease, disparities, health advocacy organizations, patient advocacy groups, pregnancy, teens
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On Disclosure, Transparency, and Firewalls: A Call for Uniform Standards


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Tweet Since Patient POV was launched March 29, I have been struggling with how to deal with the issue of industry-supported patient advocacy groups. On Thursday, ProPublica released its paper: “Financial Ties Bind Medical Societies to Drug and Device Makers” … Continue reading


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Posted in American Academy of Ophthalmology, Avastin, disclosure, Drug costs, firewalls, nonprofits, Parkinson's Disease Foundation, patient advocacy groups, transparency
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