Panel #2 -
Lawyers are going to have a field day with what is patient centeredness.
Jane Hyatt Thorpe, JD, Assoc. Research Prof.
ACA – Medicare – care individual/population, average.
IOM – patient centeredness refers to care – needs, desires of patient
another notion: patient experience.
right care, right patient every time — is this something that we can really provide?
Informed consent – case law — what do providers need to give pts. TeachBack type concept. What we are seeing – risks/benefits procedure. Drug use, volume – part. if influence outcomes. Financial disclosures – increasing requirements.
Advanced Directives – convey what their wishes are.
Provider liability – joint role. translate. liability, according to
Rights and responsibilities.
New delivery models – teams of care, focusing on empowering patients. HC law – a lot of policy variation.
Many openings for better definitions.
Michael Park, JD, Counsel, Alston and Bird
“the average patient”
20 quality measures in ACA – overlap with shared savings programs.
evidence towards individual.
Can we define better?
“Consent the patient” — grammar is important, words are important.
too much focus on getting the consent –
FDA only agency in country, no requirement that minorities. Diversity in clinical trials.
Hornbaugh? – Disability – we can’t have patients who can’t travel. should be accommodated. clinical trials
averages used in payment systems reconciling with indvidual in patient centeredness