Category Archives: Patient stories

Personalized Medicine: Read the Chart!

Bookmark and Share

Tweet This is a guest post by Ricki Lewis, PhD, who blogs at DNAScience, part of the PLOS blog network. Ricki is a science writer with a PhD in genetics. The author of several textbooks and thousands of articles in scientific, … Continue reading

Posted in diabetes, Patient stories, weight-loss surgery | Tagged , , | 3 Comments

Mental Health and the Patient Point of View:
More High-Quality Stories Needed

Bookmark and Share

Tweet I am thrilled that later today, Martha Roberts’ post on her own experience taking medication for mental illness, will run here. I first came across her post through a tweet from Ben Goldacre, author of Bad Pharma. It’s nice … Continue reading

Posted in mental health, Patient stories | Tagged , , | Leave a comment

In Her Own Words: A Young Woman With
Rheumatoid Arthritis Acknowledges Her Disability

Bookmark and Share

Tweet How do young people cope with chronic, debilitating conditions, like rheumatoid arthritis and fibromyalgia? Patient POV interviewed Lisa Jaffe Hubbell, a young woman, who only last month acknowledged to herself, that she is disabled, and is unlikely to regain … Continue reading

Posted in disability, Patient stories | Tagged , , , , , | 3 Comments

Join Patient-Centered Outcomes Research Institute (PCORI) Dialogue on National Research Priorities Today

Bookmark and Share

Tweet Are you interested in participating in efforts to shape patient-centered outcomes research priorities. Then, don’t miss today’s meeting, webcast starting 9:30 am, or via telephone to 800 number line posted below. Got comments for the PCORI people: see submission … Continue reading

Posted in Patient stories, research | Tagged , , , | Leave a comment

Patient POV’s Best of 2011

Bookmark and Share

Tweet Here’s my “best of 2011″ Patient POV, based on discussion, feedback, and commentary from readers and bloggers. 1. Writing About Alzheimer’s and Dementia Gets Complicated. Be careful what you wish for: do we want more people screened for Alzheimer’s … Continue reading

Posted in Patient stories | Tagged | Leave a comment

Top Patient POV Posts in First 2 Months

Bookmark and Share

Tweet I started Patient POV on March 29th and I have been meaning to take a look back at posts that got people thinking about healthcare, about reporting on health, and what ideas are worth considering for the healthcare system … Continue reading

Posted in engaging your readers, Patient stories | Tagged | 1 Comment

6 Types of Patient Stories We Need to Hear More About

Bookmark and Share

Tweet I hope that patient stories that I tell here can really make a contribution to helping healthcare match what really matters to patients. That means that I’d like to tell stories that have been invisible or bear continuing exposure, … Continue reading

Posted in Patient stories | Tagged , , , , , | 2 Comments

WordCount Blogathon Opens Door to Unusual Patient Stories

Bookmark and Share

Tweet On May 1, I joined the Word Count Blogathon, and already, I am meeting bloggers who have amazing stories to tell about the healthcare system. Among the stories that I hope to share with you are the following: What … Continue reading

Posted in Patient stories, WordCount Blogathon | Tagged , , | Leave a comment

Is There An Oncologist In the House?

Bookmark and Share

Tweet Imagine, if you will, that you have early (stage 1b) lung cancer, that you think you have good insurance, and that you cannot find an oncologist to follow you. That’s the story of a 55-year-old man, who asked that … Continue reading

Posted in Chemotherapy, continuity of care, Health insurance, Lung Cancer, oncologists, Patient stories | Leave a comment

How One Man Faced A Prostate Cancer Diagnosis

Bookmark and Share

Tweet The man I will call Paul remembers when he was first diagnosed with prostate cancer about a year ago. It started with a PSA of 4.3 ng/mL on a routine annual physical. A PSA of 4.0 ng/mL is a … Continue reading

Posted in Active Surveillance, Patient stories, Physician bias, Prostate Cancer, Treatment decisions | 11 Comments