Seeing Your Doctor for Prevention,
Treating On Your Own: A Report from the Field

Tweet First off, let me be clear: what I report below I am not recommending. My first obligation is to my readers. Also, I am grateful to Brooke Binkowski, a stellar journalist-friend, who spontaneously emailed me this story this morning. It arrived in my inbox amid a heated social-media discussion about who the real villains are in

Personalized Medicine: Read the Chart!

Tweet This is a guest post by Ricki Lewis, PhD, who blogs at DNAScience, part of the PLOS blog network. Ricki is a science writer with a PhD in genetics. The author of several textbooks and thousands of articles in scientific, medical, and consumer publications, Ricki’s first narrative nonfiction book, “The Forever Fix: Gene Therapy and

Mental Health and the Patient Point of View:
More High-Quality Stories Needed

Tweet I am thrilled that later today, Martha Roberts’ post on her own experience taking medication for mental illness, will run here. I first came across her post through a tweet from Ben Goldacre, author of Bad Pharma. It’s nice to know that he has not oversimplified the “bad pharma” argument into this meme: all

In Her Own Words: A Young Woman With
Rheumatoid Arthritis Acknowledges Her Disability

Tweet How do young people cope with chronic, debilitating conditions, like rheumatoid arthritis and fibromyalgia? Patient POV interviewed Lisa Jaffe Hubbell, a young woman, who only last month acknowledged to herself, that she is disabled, and is unlikely to regain function. Lisa is also a successful writer and blogger, who blogs regularly at Landguppy Productions.

Join Patient-Centered Outcomes Research Institute (PCORI) Dialogue on National Research Priorities Today

Tweet Are you interested in participating in efforts to shape patient-centered outcomes research priorities. Then, don’t miss today’s meeting, webcast starting 9:30 am, or via telephone to 800 number line posted below. Got comments for the PCORI people: see submission guidelines. Disclosure: This blog is independent and not part of this effort. The Patient-Centered Outcomes

Patient POV’s Best of 2011

Tweet Here’s my “best of 2011” Patient POV, based on discussion, feedback, and commentary from readers and bloggers. 1. Writing About Alzheimer’s and Dementia Gets Complicated. Be careful what you wish for: do we want more people screened for Alzheimer’s disease, put on questionable drugs, is the amyloid hypothesis our best bet? Think carefully before

6 Types of Patient Stories We Need to Hear More About

Tweet I hope that patient stories that I tell here can really make a contribution to helping healthcare match what really matters to patients. That means that I’d like to tell stories that have been invisible or bear continuing exposure, for health care systems to improve. Here is a draft list of 6 types of