PCORI Board Sets Listening/Webinar Mode
Only on Revised Research Priorities

Tweet It looks like The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors will hold a special teleconference/webinar in watch-only mode via teleconference/webinar on Wednesday, April 25, 2012. The Board will discuss and vote on PCORI’s revised National Priorities for Research and Research Agenda as well as review proposed Pilot Project funding awards. What:     PCORI

Patient Centeredness: Definitions Fuzzy,
Testing, Lawsuits Ahead #ECRI_FDA

Tweet Panel #2 – Lawyers are going to have a field day with what is patient centeredness. Jane Hyatt Thorpe, JD, Assoc. Research Prof. ACA – Medicare – care individual/population, average. IOM – patient centeredness refers to care – needs, desires of patient another notion: patient experience. right care, right patient every time — is

Patient Centeredness in Policy & Practice:
Live from ECRI_FDA Meeting

Tweet Numerous challenges various entities are facing and building patient-centeredness. Panel #1: Susan Dentzer, Health Affairs, Margaret Hamburg, FDA Commissioner, MD, Carolyn Clancy, MD, Director, AHRQ, Joe V. Selby, MD, MPH, Executive Director, PCORI Hamburg: onslaught of HIV/AIDS epidemic in NYC brought patients full square at table, extend that model in cancer, but needs to

An Update: The Patient-Centered Outcomes Research Institute Meeting in New York

Tweet After urging readers to attend the Patient-Centered Outcomes Research Institute (PCORI) daytime meetings in New York on Monday and Tuesday of this week, I have to say that after attending day 1, I was disappointed. That’s because it turned out to be primarily a business meeting with a mandatory public invite because PCORI is

Reminder: Patient-Centered Outcomes Research Institute Seeks Public Comment on What Matters to Patients

Tweet Designing healthcare research with what matters to patients is a relatively new concept in healthcare research. If the healthcare reformers who envisaged what is called “patient-centered outcomes research” truly want to hear from patients and the public, then tomorrow’s meeting  in New York of the Board of Governors of the Patient Centered Outcomes Research

Clarification: Patient-Centered Outcomes Research Meeting Set for Two Days, One Evening

Tweet My earlier post neglected to mention that this meeting will take place on Monday, May 16th and May 17th. Unfortunately, the Discussion Forum was on a separate announcement. It will still take place, but you may want to attend all or part of the rest of the meeting. Draft agenda is listed below. If

Upcoming Event: Putting the Patient in the Center of Health Care Research

Tweet Has health care research seemed removed from you, as if it happens from the top down? That’s understandable. Health policy people and reformers often lament that they exist in a separate world, wondering what the heck matters to patients. So I was intrigued yesterday when a friend called to tell me that there was