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Category Archives: patient-centered outcomes research

PCORI Board Sets Listening/Webinar Mode
Only on Revised Research Priorities


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Tweet It looks like The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors will hold a special teleconference/webinar in watch-only mode via teleconference/webinar on Wednesday, April 25, 2012. The Board will discuss and vote on PCORI’s revised National Priorities for … Continue reading


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Posted in patient-centered outcomes research, PCORI
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Comments Off on PCORI Board Sets Listening/Webinar Mode
Only on Revised Research Priorities

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Patient Centeredness: Definitions Fuzzy,
Testing, Lawsuits Ahead #ECRI_FDA


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Tweet Panel #2 – Lawyers are going to have a field day with what is patient centeredness. Jane Hyatt Thorpe, JD, Assoc. Research Prof. ACA – Medicare – care individual/population, average. IOM – patient centeredness refers to care – needs, … Continue reading


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Posted in clinical trials, comparative effectiveness research, FDA, patient-centered outcomes research, patients
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1 Comment

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Patient Centeredness in Policy & Practice:
Live from ECRI_FDA Meeting


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Tweet Numerous challenges various entities are facing and building patient-centeredness. Panel #1: Susan Dentzer, Health Affairs, Margaret Hamburg, FDA Commissioner, MD, Carolyn Clancy, MD, Director, AHRQ, Joe V. Selby, MD, MPH, Executive Director, PCORI Hamburg: onslaught of HIV/AIDS epidemic in … Continue reading


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Posted in Listening to patients, patient-centered outcomes research, patients
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Comments Off on Patient Centeredness in Policy & Practice:
Live from ECRI_FDA Meeting

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An Update: The Patient-Centered Outcomes Research Institute Meeting in New York


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Tweet After urging readers to attend the Patient-Centered Outcomes Research Institute (PCORI) daytime meetings in New York on Monday and Tuesday of this week, I have to say that after attending day 1, I was disappointed. That’s because it turned … Continue reading


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Posted in comparative effectiveness research, Healthcare reform, patient-centered outcomes research, PCORI
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Comments Off on An Update: The Patient-Centered Outcomes Research Institute Meeting in New York

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Reminder: Patient-Centered Outcomes Research Institute Seeks Public Comment on What Matters to Patients


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Tweet Designing healthcare research with what matters to patients is a relatively new concept in healthcare research. If the healthcare reformers who envisaged what is called “patient-centered outcomes research” truly want to hear from patients and the public, then tomorrow’s … Continue reading


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Posted in Healthcare reform, patient-centered outcomes research, PCORI
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Clarification: Patient-Centered Outcomes Research Meeting Set for Two Days, One Evening


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Tweet My earlier post neglected to mention that this meeting will take place on Monday, May 16th and May 17th. Unfortunately, the Discussion Forum was on a separate announcement. It will still take place, but you may want to attend … Continue reading


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Posted in event, Healthcare reform, patient-centered outcomes research, PCORI
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Upcoming Event: Putting the Patient in the Center of Health Care Research


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Tweet Has health care research seemed removed from you, as if it happens from the top down? That’s understandable. Health policy people and reformers often lament that they exist in a separate world, wondering what the heck matters to patients. … Continue reading


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Posted in comparative effectiveness research, Healthcare reform, patient-centered outcomes research, PCORI
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1 Comment

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